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What is ME/CFS? Learn about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, its symptoms, causes, and ongoing research.
Burnout won’t resolve on its own, so taking steps to address how you feel is essential. Here’s what the experts recommend.
Children learn the most valuable lessons with other children, away from adults.
A webinar lecture series highlights the latest in chronic fatigue syndrome research.
"Having an ongoing illness can really turn your life upside down, bringing a complex array of emotions with it."
The study faced intense criticism from patients and charities.
Trauma upends everything we took for granted, including things we didn’t know we took for granted. And many of these realities I wish I’d known when I first encountered them. So, while the work of life and healing continues, here are ten things I’ve learned about trauma along the way.
Background Post-exertional malaise (PEM) is considered to be the hallmark characteristic of myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS). Yet, patients have rarely been asked in formal studies to describe their experience of PEM. Objectives To describe symptoms associated with and the time course of PEM Methods One hundred and fifty subjects, diagnosed via the 1994 Fukuda CFS criteria, completed a survey concerning 11 symptoms they could experience after exposure to two different types of triggers. We also inquired about onset and duration of PEM and included space for subjects to write in any additional symptoms. Results were summarized with descriptive statistics; McNemar’s, paired t-, Fisher’s exact and chi-square goodness-of-fit tests were used to assess for statistical significance. Results One hundred and twenty-nine subjects (90%) experienced PEM with both physical and cognitive exertion and emotional distress. Almost all were affected by exertion but 14 (10%) reported no effect with emotion. Fatigue was the most commonly exacerbated symptom but cognitive difficulties, sleep disturbances, headaches, muscle pain, and flu-like feelings were cited by over 30% of subjects. Sixty percent of subjects experienced at least one inflammatory/ immune-related symptom. Subjects also cited gastrointestinal, orthostatic, mood-related, neurologic and other symptoms. Exertion precipitated significantly more symptoms than emotional distress (7±2.8 vs. 5±3.3 symptoms (median, standard deviation), p<0.001). Onset and duration of PEM varied for most subjects. However, 11% reported a consistent post-trigger delay of at least 24 hours before onset and 84% endure PEM for 24 hours or more. Conclusions This study provides exact symptom and time patterns for PEM that is generated in the course of patients’ lives. PEM involves exacerbation of multiple, atypical symptoms, is occasionally delayed, and persists for extended periods. Highlighting these characteristics may improve diagnosis of ME/CFS. Incorporating them into the design of future research will accelerate our understanding of ME/CFS.
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Years after spending a romantic month alone with a young photographer, Stephanie Land learns of his crippling chronic disease--and gets a glimpse of how much she meant to him.
In the UK, Jehan “Gigi,” 17, is being threatened with being sectioned - forced institutionalization - to a psychiatric hospital for her inability to eat, speak or walk due to the effects of severe ME.
A blog about eyes which includes information about vision care,eye disease and eye health related information for public awareness
If the bacteria in your gut are out of balance, you may develop dysbiosis. Here’s why it happens, what symptoms to watch for, and more.
"I don't have a medical background, but I definitely have experience."
An End of Year Message from Ronald W. Davis, PhD, and Janet L. Dafoe, PhD We have accomplished so much with the amazing donations generously given to OMF and we are grateful. We have collected huge amounts of data in our Severely Ill Patients Study, which has yielded lots of information and hypotheses. We have […]
"It’s just a matter of time, and severity."
We are thrilled to announce the release of our 2019 research summary reviewing the most current and important research into myalgic encephalomyelitis (ME) and ME/CFS of the past 10 years. Our research summary provides essential stakeholders with access to a compiled, digestible resource that can help them excel in their respective areas of expertise, including clinicians, … Introducing #MEAction’s 2019 ME Research Summary Read More »
"You can seriously go from happy to sad to angry to distraught to hurt to numb to happy all in a matter of minutes."
Rumor has it a serving of this golden milk in the evening will lull you into a restful sleep. It’s made with turmeric, ginger, peppercorns, and cinnamon, meaning it’s also packed with antioxidants and anti-inflammatory agents. Whether it helps you sleep or not, it’ll be a creamy, soothing bedtime snack for you to cradle as you relax in your pajamas.