Frequently Asked Questions About Myalgic Encephalomyelitis, commonly referred to as ME/CFS.
Today, May 1st, marks the start of the awareness month for Fibromyalgia, Lyme disease and ME/CFS (Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome). Each May charities and those affected come together to put these illnesses in the spotlight. Although more people are becoming aware of the names Fibromyalgia, Lyme disease and ME/CFS, awareness is still important and […]
One problem all of us abused groups have is that we all tend to focus on our own personal narrative, rather than look at what we have in common. As a victim of chronic Lyme abuse, if I say anything…
Frequently Asked Questions About Myalgic Encephalomyelitis, commonly referred to as ME/CFS.
What is your journey to well-being? Do you suffer from health issues or a chronic condition? Do you have M.E., CFS, or chronic fatigue? Is stress affecting your well-being? Do you have chronic fatigue or a chronic condition? Are you are seeking answers? If you have chronic fatigue for any reason (M.E., CFS, burnout, another chronic condition, on-going stress, trauma, etc.) check this book out! "The Memory of Health" is a memoir and a guide to living well. It is also a comprehensive resource on chronic fatigue, possible solutions, and on how self-care and lifestyle medicine may help you. What makes you thrive, even in the face of great odds? What makes you come alive? At the age of 22, Edie developed chronic fatigue after having surgery for a ski accident. While physical therapy was helpful, she had to seek alternative treatment to regain full use of her knee. In the course of seeking answers to her health challenges, she discovered the power of mindful living and became a conscious consumer. Whether you like mainstream, alternative, or integrative medicine as your solution for health and well-being, be conscious of the choices you make, because they matter. #cfs #chronicfatigue #chronicillness #booksonhealth #M.E. #booksonfatigue #booksonchronicfatigue #howtogetmoreenergy #adrenalinsufficiency #burnout #trauma #energy #moreenergy #theoriesofcfs
What is M.E.? - Doctors with M.E.
Fatigue has always been my worst and most prominent symptom. Managing chronic fatigue is a challenge but today I am sharing a simple strategy with you.
The Dutch neurologist Emile Keuter, a "prominent" figure in the Medically Unexplained Physical Symptoms (MUPS) world referred to the ME community as the “militant CFS/ME community”. He ends his blog by claiming that CBT seems to be reasonably effective against physical fatigue but not with ME patients and makes the suggestive remark by saying “You may guess why”. I had to respond!!!
Lisa pours her heart out in this powerful piece about her struggles and triumphs, living with M.E. (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome).
Lisa pours her heart out in this powerful piece about her struggles and triumphs, living with M.E. (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome).
Many people with a long term chronic illness become isolated. There could be a combination of reasons for this. Perhaps you can identify with any or all of the below you lose contact with family and friends who don't understand your illness or who don't know what to say or do. you may become bed bound or house bound and are no longer able to leave the house. you are unable to work. you are no longer able to socialize. you are too ill to spend long on the phone, if at all you may be too ill to write letters you may not have access to a computer you may be too ill to spend a lot of time on the internet you may live in an isolated place and are unable to drive or use public transport you live alone Recently I have felt more isolated than normal. Why? Simply because I had computer problems and for nearly two weeks I was without one. I lost contact with my friends and family. I lost all the help, friendship and support I find on a daily basis through my computer. Most of it is on face book where I have built up over many years a wonderful network of friends who make all the difference to my life. Without it I felt totally lost, had withdrawal symptoms, felt lonely and started to feel depressed. I had other things I could do and took to writing more poems. But I missed that contact. Thankfully I have now resolved my computer problems but it has made me think and realise how my life has changed and how I am dependant on my computer and this virtual world I have created. I have written a poem about being isolated Isolated From all I know From all I love Fills me with woe Isolated From family Don`t understand Or visit me Isolated As friends I lose Living alone Now a recluse Isolated Now friends `online` Virtual world Eases my time Isolated Sick and in pain My life now changed Nothing the same Isolated And so lonely I cry some tears Thinking “If only” Isolated Each endless day In these four walls I have to stay Isolated I hope and pray I can escape And get away Isolated Watching outside Through my window Life that`s not mine Isolated Behind a veil Trapped inside Just like a jail So what can you do to avoid isolation? Of course without recovery to full and normal health it's hard not to feel isolated and there is only so much we can do. Here's my list of suggestions that may help you to feel less isolated and lonely sign up to face book or any other online forums relating to your illness as it helps so much to find others who suffer the same find and join a local support group in your area when you feel well enough arrange to have a chat with a friend or a member of your family who understands and is sympathetic, as even five minutes can lift your spirits write a short letter if you are able and maybe you will receive one in return if you feel well enough go out but plan and make sure you have rests before and afterwards if you feel well enough arrange for a friend or family to visit for a short while but don't be afraid to ask them to leave I find listening to the radio or the tv helps me Maybe you have other suggestions. I would love to hear from you. Meanwhile, as in the photo above, this caterpillar has found her wings and can fly away from isolation. A bientot from the French Femme xxx
Stuart discusses his experience with Myalgic Encephalomyelitis (M.E. ME/CFS) and how three 'recoveries' using pacing were just symptom reductions but failed as soon as he exerted himself normally. Then, after 10 years of illness, he recovered in as little as 2 months.
You Might Be An M.E. Sufferer If…
ME Awareness Week will run from 6th to 12th May 2019 with many activities focused on ME Awareness Day itself (Sunday 12th May). The focus of the ME Association’s awareness campaign for 2019 will be…
People are suffering and not enough is being done done. Even the GP's who work in this field and they are few and far between, still dont fully understand it. They need to speak to health professionals who suffer with the conditions http://m.wikihow.com/Live-With-Chronic-Fatigue-or-M.E
I’ve been chipping away at drawing this comic for a while now. A bit of dark humour to help spread awareness for ME/CFS (Myalgic Ence...
Lisa pours her heart out in this powerful piece about her struggles and triumphs, living with M.E. (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome).
I’ve been chipping away at drawing this comic for a while now. A bit of dark humour to help spread awareness for ME/CFS (Myalgic Ence...
