Is there no cure for fibromyalgia,ME/CFS and POTS? What do remission & recovery look like for patients? CFS Unravelled answer your questions
It’s always encouraging to see established researchers from outside the chronic fatigue syndrome (ME/CFS) and fibromyalgia fields converging on them. David Systrom, a pulmonologist at Brigham and Women’s hospital in Boston, has been interested in idiopathic or unexplained exercise intolerance for at least a decade. He and Oldham recently published their magnus […]
Do you get overheated? Get ideas for heat survival when you have fibromyalgia and chronic fatigue syndrome.
Discover what it means when someone looks well when chronically ill. Hint: it's not exactly what most people think. In this post I share the reality.
Fibromyalgia is still a widely misunderstood condition, one that the medical community is still exploring and learning about. Fibromyalgia presents itself in several forms, which contributes to its notorious mystique. One less well-known condition caused by fibromyalgia is edema (or fibromyalgia swelling). Is edema plaguing you? Fibromyalgia Complications: What is Edema? Edema is swelling caused by […]
Healing takes time and is a course of trial and error. Here are 5 mistakes to avoid in recovery from fibromyalgia and CFS.
Fibromyalgia doesn’t scare me. It used to, particularly when I suffered from it nearly 35 years ago. But not anymore. Actually, the fibrous pain I once had was not my most pressing complaint (though it certainly caused a drag in my day-to-day existence). Worse during certain times of the month and better during […]
Real people who live with fibromyalgia describe what fibromyalgia feels like to them.
Can you relate?
Dealing with pain, day in and day out, can be extremely tiring. While there is no cure, there is definitely hope for pain relief. Yoga for fibromyalgia relief is what we are talking about
Physical Activity and Sleep in Chronic Fatigue Syndrome and Fibromyalgia Syndrome: Associations with Symptom Severity in the General Population Cohort LifeLines. This study was done at The University of Groningen, University Medical Center Groningen, Department of Psychiatry, Groningen, Netherlands and published online 2018 Nov 4. Functional somatic syndromes (FSS), including chronic fatigue syndrome (CFS) and fibromyalgia syndrome (FMS), are common, disabling, and costly health conditions without known underlying organic pathology. The main strength of this study is the large population cohort. To the best of our knowledge, this is the first study that evaluates physical activity and sleep duration in patients with CFS and FMS in one large population cohort. OBJECTIVE: The aim of the study was to compare physical activity and sleep duration between patients with CFS, patients with FMS, and controls and to examine the association between physical activity level and sleep duration with symptom severity within these patient groups. METHODS: This study used data from LifeLines, a general population cohort in which 1.0% reported CFS, 3.0% reported FMS, and 95.7% reported neither CFS nor FMS. Physical activity, sleep duration, and symptom severity were assessed by questionnaires and analyzed using ANCOVA and regression analyses, adjusted for age, sex, body mass index, smoking, and educational level. RESULTS: Patients with CFS and FMS had significantly lower physical activity scores than controls. Patients with CFS had the longest sleep duration compared to patients with FMS and controls. A linear association between physical activity, sleep duration, and symptom severity was only found in controls, in whom higher physical total activity scores and longer sleep duration were associated with lower symptom severity. In contrast, quadratic associations were found in all groups: both relatively low and high physical activity scores and relatively short and long sleep duration were associated with higher symptom severity in CFS, FMS, and controls. CONCLUSION: This study indicates that patients with CFS or FMS sleep longer and are less physically active than controls on average. Both low and high levels of physical activity and short and long sleep duration are associated with higher symptom severity, suggesting the importance of patient-tailored treatment. FULL REPORT
Have you been wondering is that new symptom, you are experiencing, part of your Fibromyalgia? Have you been wondering if you might have Fibromyalgia? (Of course it does need the diagnosis of a medical professional.) Have you been wondering what this Fibromyalgia, you keep hearing about, is all about? People with Fibro have so many more symptoms than just pain and tenderness. Of course they do not have to have all the symptoms listed and also sometimes the symptoms make get worse or lessen. Gastrointestinal: constipation, nausea, bloating, gas, bladder problems, food allergies, food intolerances Whole body: fatigue, tiredness, stiffness, cramps, weight gain, difficulty losing weight, Sensory: pins and needles, sensitivity to cold, sensitivity to pain, allodynia, Sleep: difficulty falling asleep, sleep disturbances Cognitive: forgetfulness, lack of concentration, difficulty finding words, Mood: anxiety, mood swings, depression, irritability, nervousness, Other: dizziness, painful menstruation, headaches, migraines, chemical sensitivities, Below you will find links to articles about a variety of Fibromyalgia symptoms by people who have Fibromyalgia. Please just click on the link to read the full article.
Do you know the difference between Symtpoms of Fibromyalgia and vitamin d deficiency? You're doctor doesn't either. Fibromyalgia vitamin d symtpoms are the same. Misdiagnosed fibromyalgia is high.
For Fibromyalgia Awareness Day on 12th May, I’m raising awareness by sharing my fibro story up to this point. I have been blogging about my experience with chronic illness and particularly fi…
This commentary begins by presenting a simplified way of making the diagnosis of myalgic encephalomyelitis [ME/CFS] using the 1994 CDC case definition. The format used can easily be modified for other case definitions. The commentary then discusses whether ...
A hypothesis by two German researchers not only potentially explains the fatigue and exertion problems in ME/CFS but also the blood volume, cardiac and nanoneedle findings.
Pain is a subjective experience. It is difficult to comprehend other people’s experience of pain without having a way to somehow compare pain levels. So, back in 1971, Ronald Melzack and Warr…
Case study – 28 yo mother of 2… * Hot flashes/night sweats * Hurt all over – joints are killing her especially hips * Numbness & tingling in toes, feet & fingers * Muscles hurt especi…
Fibromyalgia is an unusual medical condition. While it cannot be cured completely, what you eat appears to be a fundamental piece of the puzzle.
Here Is Everything You Should Know About Fibromyalgia
Saving My Own Life
Fibromyalgia, commonly called fibrositis, is a fairly common condition and one not easily treated by conventional means. Natural methods often work well for fibromyalgia, and some of the methods are set out in this article.
What are the main fibromyalgia symptoms? Anyone living with fibromyalgia will tell you there are so many symptoms. In fact, before I was diagnosed I use to try to remember them all when I went to a new specialist by working through the parts of my body and listing all the symptoms in each part. For example head was scalp pain, blurry vision, tingling in lips and jaw pain and a feeling I could not relax my jaw. As you can see there are a lot of unrelated, unique symptoms and not every person will get all of these and they will not get them all at the same time as the symptoms fluctuate. So here I will be listing the main symptoms that most people get. 18 Tender Points of Fibromyalgia (scroll down for image with more detail) One unique thing about fibromyalgia is the 18 tender points on the body. These are specific locations, in the diagram above, that hurt when pressed. People who do not have fibro only feel pressure, not pain, when touched on these points. These are the main symptoms of Fibromyalgia: Widespread, chronic, muscle pain and tenderness (tender points) · pain in arms, legs, neck, shoulders, back, hips Often with: · Morning stiffness · Headache · Fatigue · Sleep disturbances including insomnia, inconsistent sleep patterns, unrefreshed sleep · Memory problems · Light sensitivity · Dizziness · Numbness/tingling in arms/legs Sometimes also: · Irritable bowel syndrome · Bladder control problems · Depression · Anxiety American College of Rheumatology (ACR) fibromyalgia tender points 1990 classification criteria If you are trying to get a diagnosis of fibromyalgia (FMS) you may want to see the American College of Rheumatology (ACR) criteria for diagnosing fibromyalgia. This was endorsed in 2010. Prior to this the tender points were used as a major diagnostic tool. Now that we have the 2010 criteria it does not mean that the tender points have magically gone away. They can still be used as a diagnostic tool but they are only part of what is needed. Here is an excerpt from the ACR. If you are looking for a more in-depth list I suggest you go to MORE INFORMATION ON SYMPTOMS OF FIBROMYALGIA Thanks for dropping in today and if you have just been diagnosed you may want to sign up for my coping tips for living with fibromyalgia. I have been living with fibro for 20 years and have found many helpful ideas to help you reduce the many symptoms you may have.
