After speaking with 100s of people that have found a way to cure their Fibromyalgia, POTS, ME/CFS and MCS, there are many learnings to be shared. Raelan Agle who also shares recovery interviews on her YouTube channel was the ideal person to join me for a conversation about recovery.
What prompted Dan Neuffer to start this new podcast for people experiencing ME/CFS, Fibromyalgia, POTS and MCS? What are some of the worst injustices we experience with invisible illness, and what can you do about it?
Emily Bland is a Clinical Exercise Physiologist treating patients with OI, POTS, CFS/ME, persistent pain, Fibromyalgia... She specialise
Dan's Podcast:Wisdom From The Other Side Of Recovery from Fibromyalgia, ME, CFS, POTS & MCSSubscribe and listen to the podcast on your favourite app Episodes & Show Notes: Episode 22: Snippet: Is Looking For Treatments Stopping You Recovering From ME/CFS, PVFS(long-covid), Fibromyalgia & POTS? In this insightful episode, Dan dives into the common struggle of searching […]
This is the full list of recovery stories by people that experienced ME/CFS, Fibromyalgia, POTS and MCS. Lots of recovery insights via full interviews.
If you have ME/CFS, Fibromyalgia, POTS or other invisible illness, then chances are you find it frustrating trying to get other people to believe and take your choices seriously, especially family and friends. For years I have been giving people advice and find myself getting annoyed after all these years when I hear the suffering and frustration that people endure because their choices are not respected.
Fatigue and Pain are only part of the symptoms. The list of ME/CFS/Fibromyalgia symptoms is much longer than many people realise.ME/CFS/Fibromyaliga Symptoms go way beyond fatigue and pain, making the name somewhat inappropriate.With this illness having different expressions, the list of symptoms varies significantly among sufferers and the illness is often categorized into different groups such as Chronic Fatigue Syndrome (CFS), Fibromyalgia (FM) or Fibromyalgia Syndrome (FMS) and Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS). In the United Kingdom, CFS is usually called Myalgic Encephalomyelitis or (ME). However, many parts of the medical community have still not come to agreement
“I feel like I am doing all the things I am supposed to do, but I am still not getting any better! Why are THEY recovering and not I?”I think only
Colin tells his story of recovery from long-term ME/CFS & MCS using ANS REWIRE.
What prompted Dan Neuffer to start this new podcast for people experiencing ME/CFS, Fibromyalgia, POTS and MCS? What are some of the worst injustices we experience with invisible illness, and what can you do about it?
In this episode, world-renowned fibromyalgia researcher Professor Dr. Kati Thieme shares her research and understanding of the root cause of fibromyalgia. She tells of how her theoretical research accidentally led to the discovery of an effective treatment for fibromyalgia called Systolic Extinction Training (SET), which when combined with psychological brain-training strategies, is very effective in resolving chronic pain in fibromyalgia and other conditions.
Kiki (@chronicallyhealed) tried lots of cures for POTS but nothing really worked for years. Finally, she cured POTS and ME/CFS in stages over a period of 3 years and regained her health despite being diagnosed with Chronic Lyme Disease. In this interview, she tells her story.
What prompted Dan Neuffer to start this new podcast for people experiencing ME/CFS, Fibromyalgia, POTS and MCS? What are some of the worst injustices we experience with invisible illness, and what can you do about it?
Dr Delia McCabe is a neuroscientist specialising in stress resilience and the impact of nutrition on brain health and mental well-being. We discuss the importance of specific nutrients for recovery from chronic illness like ME/CFS, Fibromyalgia, POTS & MCS and restrictive diets such as vegan or vegetarian diets.
In today’s interview Harvard and Tufts neuroscientist Dr. Michael Van ElZakker shares his fascinating new paper Chronic Fatigue from Vagus Nerve Infection: A Psychoneuroimmunological Hypothesis. His hypothesis proposes that an infection of the vagus nerve can cause greatly exaggerated chronic sickness responses like fatigue, pain and more. Our interview also touches on the mast cell link […]
Unfortunately, people still ask if fibromyalgia is real. With a range of medical evidence, we put this question to rest and explore the impact on sufferers.
What prompted Dan Neuffer to start this new podcast for people experiencing ME/CFS, Fibromyalgia, POTS and MCS? What are some of the worst injustices we experience with invisible illness, and what can you do about it?
Could your Fibromyalgia Actually be Ehlers-Danlos Syndrome? No Fibromyalgia symptoms can overlap with autoimmune diseases and other arthritis conditions making it difficult to diagnose. The defining symptoms of fibromyalgia are often associated with other subjective and objective symptoms which occur in combination. The cause of fibromyalgia is considered as complex as its clinical presentation. The exact … Continue reading Joint Hypermobility (EDS) and Fibromyalgia + Myofascial
Recently, I launched a free self-care e-course. In my free courses, I send daily lessons, but before we start anything I ask a “pre-homework” question where I encourage the students to e-mail me back with their main concern or past issue with this topic. So in this case, I asked what the hardest part of […]
Hiya! For my new readers, I've been going through this challenge gradually to try to raise awareness about invisible and chronic illnesses, and to share my experiences in case they help someone else. Today brings us to Day 13 and: Has your physical illness had any effect on your mental health. Explain. I speak about my health often on this blog, and I may have covered this topic before, but for the benefit of new readers I'll do so again. Yes, my mental health has been affected by Fibromyalgia and CFS/ME. I have depression and anxiety disorder which I believe is a direct result of being physically unwell for so long. There is no doubt that when you lose your good health, source of employment, independence etc. etc. it can affect you in a bad way. I think it would be more unlikely for someone NOT to be depressed when their whole previous lifestyle has been turned on its head. The good news is there is help - anti depressants and anti anxiety medications, and Cognitive Behavioural Therapy, which has helped me recognise when I'm spiralling into bad thoughts and to address them. It has also helped me learn distraction techniques. You can read more about how CBT has helped me here. There's no denying a condition which takes away the fullness of your life and throws a whole new set of challenges at you it IS difficult, but there are mechanisms to help and life can still be very enjoyable. When your health is affected you realise what REALLY matters, and much of which was an obsession before - a career, the future, owning a home - takes a back seat to surviving life from day to day and trying desperately not to let your illness deteriorate any further. More emphasis is put on relationships with the good people in your life - friends and loved ones - and as the mere acquaintances and fair weather friends fall away like dying petals on a sunflower at the end of summer, the realise people you are left with are the cream of the crop. In many ways chronic illness re-frames life from a new perspective and brings new clarity to what really matters. I see it as a positive. Whatever challenges there are in my life, I'm just so happy to still be here. Thanks for reading!
When I say God’s Word is life and breath to me, I mean it. I mean it in a physical sense. Countless times I’ve found myself telling others, “I wouldn’t be here without God’s Word.” I honestly don’t know if I could have survived some of the seasons I’ve endured without it. After extensive
Are you always uncomfortable in your clothes? Look here for simple tips for how to care for, hack, and adjust your clothes for maximum comfort!
Living with chronic pain is challenging. Check out this list of the best chronic pain podcasts to help you stay dialed in to your condition.
