“You have to learn about the illness,” she said. “You have to figure out how to explain it to every person you meet every day.”
Meet Reiko Donato, an over 50 athlete who developed a passion for triathlon and training after age 50, and her fight to find a cure for TSC.
I decided to create some new Epilepsy Awareness images tonight. Here they go: I hope you all enjoy these and are able to share and spread Awareness for Epilepsy!
Its Rare Disease Day on the 28th February so I wanted to share a bit more about the two rare diseases that my youngest daughter and I have. When I was young around 6 I had some suspi…
Anna Kendrick is 'really, really happy' dating Bill Hader, a source tells PEOPLE
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9781734269505. New condition. Trade paperback. Language: English. Pages: 404. Trade paperback (US). Glued binding. 404 p. Contains: Unspecified. \"When Tiffani married the love of her life, Lou, after graduating from college, she assumed she would continue to live the affluent life she had always known, having grown up in Newport Beach, California. She never imagined she would soon be stalked by creditors, driving a car on the repossession list and forced to worry about providing basic necessities for her family, such as buying diapers and groceries. This increasingly desperate situation forced her to decide to return home to her parents with her baby and husband. After getting their life back on track, and with Tiffani in her final year of law school, they decided to have another baby. At eight months old, however, they discovered that their new daughter Tiara had Tuberous Sclerosis, a rare genetic disorder resulting in intractable epilepsy, developmental delay, chronic hospital admissions, and uncontrollable violent behaviors. So how did Tiffani cope with her new reality? She chose to fight. She challenged the doctors, battled the insurance companies, and refused to give up caring for Tiara even when her own life was at risk. The author's story of unconditional love, unimaginable challenges, and, ultimately, triumph, is a compelling one, which will take hold of your heart and not let go. This memoir will inspire you to tackle fear, encourage you never to give up, and remind you always to trust your gut instincts\"--
"Because a little life is at stake."
