When their son was diagnosed with severe form spina bifida, these parents from Missouri wished there was a way for him to get around. So, they invented "The Frog," which is a crawling device they now send to families around the world.
Holly shares her story of raising a child with spina bifida and the importance of catheter choice to her daughter's quality of life.
It's all about the letters and numbers. For those not in the spina bifida world there are actually 2 sets of numbers and letters to work w...
Spina Bifida (SB) is a birth defect that occurs when the spine and spinal cord do not form properly. Learn the symptoms, causes, types, treatment, and more.
Roman Dinkel's parents didn't know whether he'd ever walk after being born with Spina bifida — now, the 2-year-old will trick-or-treat without his crutches
When you live with an obvious disability, especially one that is as misunderstood as Spina Bifida, it is easy to waffle between wanting to keep everything private and wanting to help people understand your life better. Every October, I debate whether or not I should participate in Spina Bifida Awareness month on social media. Do … Read More
Spina bifida (Latin: “split spine”) is a developmental congenital disorder caused by the incomplete closing of the embryonic neural tube. Some vertebrae overlying the spinal cord are no…
Reviews, written by a children’s librarian, of 10 of the best kid-friendly books about high-achieving people who are also dealing with disabilities.
An adorable little boy is spreading smiles across the globe after he celebrated the first moment he walked unassisted beside his pet dog.
Roman Dinkel, of Overland Park, Kansas, was born with spina bifida, a birth defect that occurs when the spinal cord and spine don't develop properly, which can keep people from walking.
The Spina Bifida Association of Central Florida (sbacentralflorida.org/) is committed to creating awareness of Spina Bifida. © 2013. All photography is copyright of Amanda Kern (www.amandakern.com) and the Spina Bifida Association of Central Florida (sbacentralflorida.org/). Photos may be shared to help create awareness of spina bifida, however, photos may not be altered or modified and may not be used in any publication, contest, competition, commercial or non-profit cause without the consent of Amanda Kern & the Spina Bifida Association of Central Florida.
Nursing goals for clients with spina bifida includes prevent infection, maintain skin integrity. prevent trauma related to disuse, increase family coping skills, education about the condition, and support.
Δισχιδής ράχη. Οι περιπτώσεις δισχιδούς ράχης ποικίλουν ανάλογα με τον τύπο και τη σοβαρότητα της συγγενούς ανωμαλίας της σπονδυλικής στήλης.
Several types of spina bifida can affect an infant’s spine. Find out more about them as well as the symptoms, causes, and treatments.
Every life is a story. All of these stories are connected to the ones before. Some of the ones before us had faith to try a new route, a new way. They choose to believe that new ways were possible…
October is Spina Bifida awareness month! The month of October is near & dear to our hearts as one of the big inspirations behind Everything But Typical has Spina Bifida. We use this time to spread awareness & promote acceptance of those with Spina Bifida as well as other disabilit
Learn more about services at Mayo Clinic.
A procedure combining surgery with stem cell treatment has aided two bulldog puppies with spina bifida, and a team of UC Davis researchers hopes to test the therapy in human clinical trials.
We share a comprehensive list of camps for kids with spina bifida as well as other special needs by state and location. Learn more here!
Spina Bifida and the challenges of incontinence and neurogenic bowel: diapers & supplies through Medicaid, at no cost to you.
For the first time in Canada, a team of surgeons has successfully performed in-utero surgery to repair a form of spina bifida, two Toronto hospitals say.
"Let me show you your daughter now."
I used to think God made a mistake when he made me. This is how I realized I was wrong.
What is pediatric physical therapy? - Austin Physical Therapy Specialists - apts2016 - Pediatric physical therapy is a therapy that helps children with movement problems. It can help with conditions such as cerebral palsy, muscular
This is a cause that's close to my heart. Anyone with a special needs child understand what I go through daily. My son has Spina Bifida, club foot and hydrocephalus (water on the brain) for which he has a shunt in the head to relieve the pressure and leg braces. when I found out that the baby I was carrying had a neural tube defect I had no idea what the meant or what to expect. My worst nightmare came true, his clinical diagnosis is Spina Bifida with hydrocephalus. Which means his spine did not form correctly so his lower body does not work right either. His legs are twisted, plus needs medicine (which I have to pay out of pocket for) to release urine and bowels. Plus the hydrocephalus means water on the brain and one of his many surgeries put a shunt on his brain to help his body release the pressure of water on the brain. His eating habits are not that of a kid his age, he has a very strict diet, and it takes him way longer to finish his food. He will be in diapers (which I have to pay out of pocket) for the rest of his life and I have to catheterize him every couple of hours. Which why I can not work since daycare's do not want to take the responsibility of doing medical treatments. He has had so many surgeries and I am so proud of him for pulling through them all and being so strong. Now has come the time for the next phase in his life, independence. This means he needs a lot of adaptive equipment needed to help him get around the house and do personal care tasks that I've been doing . Between going to all of the different types of therapy appointments, doctor appointments and surgeons appointment I don't have time for much else. Everything has one thing in common, they all want money which is something that I have less and less of as the time goes by. Any donation will be appreciated no matter how little or big. Some of the thing that the monies will be used for are the following; customized wheelchair $8,000 Power lift for the car $3,500 plus installation $400 Bath lift $1,500 Ramp $500 Powered Bed $3,500 Medications ($200 monthly), diapers ($800 monthly), Bed under pads ($500) other incontinence supplies plus personal care items $2800 monthly Bathroom Safety Aid equipment - bath chair $800, Grab Bars Special Needs Child Restraint system $800 Standard $1200 Total expense that need to be covered $24,000 If you can find it in your heart to give please go hear or share this post. I found a worthy charitable cause https://www.facebook.com/donate/502063180298995/ or go here either one https://www.gofundme.com/funds-for-severely-disabled-child-equipment-needs&rcid=r01-154497818273-149c7751e89d414c&pc=ot_co_campmgmt_w If you can only share this post it would be much appreciated.
