Have you tried these hacks?
A lot of chronic illnesses come with fatigue and other symptoms that impact your energy. Some of them even have exercise intolerance as a symptom. In these illnesses, exercising causes symptoms and…
These are my chronic illness must haves. Gadgets to make our lives with chronic pain and fatigue easier, from cleaning to self-care
Have you tried these hacks?
A lot of chronic illnesses come with fatigue and other symptoms that impact your energy. Some of them even have exercise intolerance as a symptom. In these illnesses, exercising causes symptoms and…
Let's talk about homemaking with chronic illness and the effect it has on our ability to keep up with all the usual homemaking tasks we are responsible for.
The loss of identity is an inevitable trauma experienced by those who become chronically ill or disabled. Here's how to regain your self-worth.
Having a chronic illness definitely makes life harder. I'm assuming that, like me, you don't have the resources to hire a full-time nanny, chef, housekeeper, personal assistant, etc. either.
So many Spoonies aren't talking about exercise intolerance and what it means to our daily lives. How do we live with it and do about it?
One of the most important parts of treating fibromyalgia is a healthy fibro diet. To help with fibro recipes, here is January's monthly fibromyalgia meals.
The Spoon Theory by Christine Miserandino. How to explain what life with a chronic illness really is like to healthy people.
A key part of living with chronic pain is describing pain to doctors, which can be surprisingly difficult. I still find it hard, and I've been doing it since 2001! With that in mind, I've written this post about describing pain levels to a doctor. I'm specifying doctors in this post because getting people in your life like a partner or family member to understand your pain is a different situation from explaining it to your doctor.
Chronic Illness Pacing - What Is It? For anyone with chronic fatigue syndrome, fibromyalgia or any other chronic illness which leaves you with fatigue as
Part of living with RA is the rheumatoid arthritis flare up. In this post, RA patient Kate the (Almost) Great shares the beginner's guide to a flare.
My body was deteriorating and at the time I didn't understand why. These were the 11 early warning signs pointing to my autoimmune disease.
Dysphagia is a therapeutic term that implies that a patient experiences issues gulping. There are many reasons / conditions that can cause dysphagia. Furthermore, somebody who experiences dysphagia frequently finds that it makes life exceptionally troublesome. Contingent upon their condition, gulping can be extremely excruciating, which makes eating and getting enough sustenance a test. What’s […]
Have you tried these hacks?
🥄this digital fibromyalgia symptom tracker journal page is also useful for those living the spoonie life and needing a chronic pain journal page or something to record symptoms of their disability, invisible illness, auto immune disease, etc.🥄 I have fibro and deal with its many symptoms each and every day. While we know there isn’t a cure for fibro (yet🤞🏻), there are known ways to help. One of them is tracking your daily symptoms and using it to refer back to when trying to work out the reasons why one might enter a flare up. Pages like this also help us to have a degree of control over ourselves and our lives. ✨This is the journal page I originally made for myself and is the final product after many changes to get it just right. it helped me identify that:- the fructose from fruit causes me to flare up- 6 hours of sleep is too little, 9 hours is too much- preservatives in food are my nemesis - dairy foods are not worth the few minutes of yumminess- the days i would wash, dry, and straighten my hair were days that left my sore and tired. i now visit the hairdressers each week. - the humid weather made my joints ache more than the cold weather did. the details listed above are just a handful of the many, many things tracked & noticed. I’m sure that to those living without fibro, this appears to be a list of no real significance. however, to me they were a revelation. being able to identify, pinpoint, and eliminate some of the things that made my life miserable made me feel empowered once again, like i was not just existing at the mercy of my physical body. I hope you are able to create your own list of things to boot from your life. i also help this page helps you as it’s helped me 🙏🏻 ———————————————————— This page can be printed or kept on one’s device. Using an app, such as Notability* (free from app stores) can help to use the page to its full potential in a digital setting ✨Areas covered in the page: (in both A4 and US Letter size) - pain levels- visual chart for making areas of pain- the days symptoms- flare ups - stress levels- activity check list- sleep, hydration, food- and more! 🪐 the page come in: ▪️full colour: for the digital journal lovers: these pages work beautifully in apps such as Goodnotes and Notability, or the PDF program on your device. ▪️black and white: for those not needing or wanting the colour, or want to add their own. b&w is best for when printing ▪️in sizes A4 and US letter: so no matter where you reside, you can print them in your preferred size (if you want to change the size use your printers scaling function) ✍🏻Features hand illustrated designs ————————————————————— 🧑⚕️Please note that it's important to consult with your healthcare provider before starting any self-care plan, including journaling, to make sure it's safe for you to do so and if it's going to be beneficial for your specific condition ———————————————————— So, what is fibromyalgia? Fibromyalgia is a chronic pain condition that affects the muscles, tendons, and ligaments. Symptoms include widespread pain, tenderness, and stiffness in the muscles and joints, as well as fatigue, insomnia, and depression. The cause of fibromyalgia is not well understood, but it is thought to be related to a combination of genetic, environmental, and psychological factors. Fibromyalgia is usually diagnosed by a healthcare provider based on the presence of certain symptoms, including pain that has been present for at least three months and the presence of tender points on the body. There is no known cure for fibromyalgia, but various treatments such as medication, physical therapy, and lifestyle changes can help to manage the symptoms. -------‐-------------------------------------💌 subscribe to get emails every now and then from The Wandering Moon Co. and receive a super secret subscriber-only discount code! https://linktr.ee/thewanderingmoonco -------‐-------------------------------- ⭐️Holding Space for Myself is a softcover journal I’ve created for those with chronic illness, disability, and pain. It can be found here:https://www.etsy.com/au/TheWanderingMoonCo/listing/1377366365/journal-book-softcover-chronic-illness?utm_source=Copy&utm_medium=ListingManager&utm_campaign=Share&utm_term=so.lmsm&share_time=1672737321964 ⭐️ A pain tracker journal page is also available, find it here:https://www.etsy.com/au/listing/1283676978/pain-journal-page-chronic-acute-pain 😴 A sleep tracker journal page is available and can be found here: https://www.etsy.com/au/TheWanderingMoonCo/listing/1325645963/sleep-tracker-journal-page-download?utm_source=Copy&utm_medium=ListingManager&utm_campaign=Share&utm_term=so.lmsm&share_time=1671437994859 ♾️ links for other chronic pain and illness pages: ♾️ ⭐️Holding Space for Myself is a softcover journal I’ve created for those with chronic illness, disability, and pain. It can be found here: https://the-wandering-moon-co.myshopify.com/products/disability-pain-fibromyalgia-journal-holding-space-for-myself-a-journal-for-chronic-pain-and-illness?utm_medium=product-links&utm_content=ios&utm_source=copyToPasteboard 💎 appointment tracker and log page set: https://the-wandering-moon-co.myshopify.com/products/appointment-tracker-and-log-pages-set?utm_medium=product-links&utm_content=ios&utm_source=copyToPasteboard ⭐️ A pain tracker journal page is also available, find it here: https://the-wandering-moon-co.myshopify.com/products/pain-journal-page-tracker?utm_medium=product-links&utm_content=ios&utm_source=copyToPasteboard —————————————————————————- 💞 purchase with purpose 🫂🪙 The Wandering Moon Co. has teamed up with the amazing folks at i=Change. a dollar from every order will be sent directly to one of three NGOs: Protecting Women, Beyond Blue (mental health), and Women's Shelters. ——————————————————————————————————- a note on AI:The Wandering Moon Co. strictly refrains from employing any form of artificial intelligence in the production of its digital items, including journal pages, journal booklets, reference guides, cheat sheets, and more. We recognize the dynamic nature of our world, driven by technological advancements, and assure you that The Wandering Moon Co. and its products will continue to uphold principles of authenticity, genuineness, and craftsmanship. We deeply value our esteemed customers and clients, and we are committed to keeping them well-informed about our creation processes and practices. As a small business, transparency and handmade excellence are at the core of our operations, and we maintain the highest standards of customer care. ——————————————————————————————————-terms of use: ▪️digital downloads from The Wandering Moon Co. are for personal use only. ▪️intellectual property rights belong to The Wandering Moon Co. ▪️reproduction, distribution, modification, & commercial use are prohibited. due to the nature of these items, downloads are non refundable. *I have no affiliation with Notability. I am simply a user of the app and find it useful. ——————————————————————————————————-
Part of living with RA is the rheumatoid arthritis flare up. In this post, RA patient Kate the (Almost) Great shares the beginner's guide to a flare.
"I thought it was completely normal to feel the way I did."
The best diet for fibromyalgia is one that helps you manage and mitigate your symptoms. Here’s how to create a diet that works for you!
Check out what essential items I pack in my chronic illness day bag for vacations, day trips, and other fun summer adventures.
Chronic Illness Pacing - What Is It? For anyone with chronic fatigue syndrome, fibromyalgia or any other chronic illness which leaves you with fatigue as
Part of living with RA is the rheumatoid arthritis flare up. In this post, RA patient Kate the (Almost) Great shares the beginner's guide to a flare.
"Just because I am at work doesn't mean I actually feel well enough to work."
Let me start by telling you something about the name of this disease: It has been called Sjogren's "Syndrome" since Dr. Henrik Sjogren wrote his extensive paper about it. In recent decades, researchers have learned much more about symptoms that even Dr. Sjogren didn't identify, as well as how the disease works. The term "Syndrome"
Check out what essential items I pack in my chronic illness day bag for vacations, day trips, and other fun summer adventures.
This Spoonie Planner is a game-changer for chronic illness management! I made this Spoonie planner for my friends who have conditions that require energy management!
I'm slowly accumulating tools that make disabled life a little easier, but there are still a few chronic illness products on my wish list!
"Just because you’re now ill doesn’t mean date night should go out the window."
Image found here . Too often, uninformed health care providers assume that Sjogren's Syndrome is simply a disease that affects tears and s...
Going back to school is a daunting task for many spoonies, wether it be middle school or college. Knowing what to keep on you can be cause for a lot of stress. I personally (and I'm sure many of you could agree with me) like to be overly prepared. What if I have a flare-up? What if I suddenly have a new symptom? What if I'm out longer than planned? What if I have to go to the hospital? - These are just a few question I have asked myself before going out even for just an hour or so. From this I h
Learning your limitations is a big part of being chronically ill. Check out some of these smart services to see if they can aid with your daily tasks.
Knowing which items in the grocery store are fibro foods (and which are not) will make your fibromyalgia journey much easier in the long run.
Chronic pain syndromes like fibromyalgia and arachnoiditis cause debilitating symptoms and have no cure. Treatment focuses on managing pain and related emotional disturbances. Some experimental tre…
How are myofascial pain syndrome and fibromyalgia related - or are they? How to treat myofascial pain syndrome and why doing so may help your fibromyalgia pain.
Humor is a great way to cope with anything and we all need a little smile to brighten the day so sharing some Fibro funny pics is what this post is all about. Humor can be useful in helping us make light of a difficult situation and those with chronic pain know how difficult pain and other symptoms can be to live with constantly. So we are happy to share with you some Fibro humor to hopefully make you smile. Now we know that everybody has different tastes in humor so we have tried to provide a variety - angry humor, sarcastic, self-deprecating... Shared by Jools on twitter @BarrysDaughter If you are looking for more Fibro Funnies you might also enjoy the memes every day on twitter where we share #FunnyFibro jokes and sometimes on facebook too. If you are on Pinterest we have our Fibro Funny quotes there with so many humorous memes.
8 things to keep on your nightstand when you live with chronic pain
