Do you experience these symptoms?
A blog about special needs, chronic illness, parenting, and life in general.
"I always feel like running away right after."
Have you recently been diagnosed with Ehlers-Danlos syndrome but still have symptoms that don’t appear to be directly related? Do you have a friend who is incre
Discover effective treatments for Ehlers Danlos Syndrome (EDS): relief from pain, joint support, and improved quality of life.
Have you recently been diagnosed with Ehlers-Danlos syndrome but still have symptoms that don’t appear to be directly related? Do you have a friend who is incre
"Knowing all I know about EDS now I cannot believe they missed the signs..."
You have been feeling sick for a very long time. Had many routine tests come back clear. Yet, you have been in pain for many months, maybe even years. You are still trying to navigate how to have …
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Dental hygienists are well positioned to identify, treat, and refer patients who present with suspected or confirmed EDS signs and symptoms.
Some people with Vascular Ehlers-Danlos syndrome have a noticeable characteristic appearance, while others don't have any outward signs at all.
"I always thought I was just clumsy."
Self Managing EDS. Here are a collection of natural resources for Ehlers Danlos Syndrome, hypermobility joint syndrome & hypermobility spectrum disorder.
In recent years, an association between hypermobile Ehlers-Danlos syndrome (hEDS), mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS) has garnered attention and patients are increasingly presenting with this triad. However, a real relationship between these entities is unclear due to a lack of scientific validity. We conducted an extensive review of the literature using two different search strategies. A narrower strategy included 88 searches of various combinations of terms for each of the three conditions, yielding 19 unique papers. A broader search included 136 searches of various combinations of terms but included all forms of EDS and yielded 40 unique papers. Of these, only four and nine papers from the narrower and broader search strategies were original research articles. None of these papers resulted from a combination of the search terms for the three conditions. All three clinical entities are controversial in either existence or pathogenesis. MCAS is a poorly defined clinical entity, and many studies do not adhere to the proposed criteria when establishing the diagnosis. Patients previously diagnosed with EDS hypermobility type may not meet the new, stricter criteria for hEDS but may for a less severe hypermobility spectrum disorder (HSD). The pathophysiology of POTS is still unclear. An evidence-based, common pathophysiologic mechanism between any of the two, much less all three conditions, has yet to be described. Our review of the literature shows that current evidence is lacking on the existence of MCAS or hEDS as separate or significant clinical entities. Studies proposing a relationship between the three clinical entities are either biased or based on outdated criteria. The reason behind the purported association of these entities stems from an overlapping pool of vague, subjective symptoms, which is inadequate evidence to conclude that any such relationship exists.
10 Ehlers Danlos Syndrome Symptom Hacks As you know, I was finally diagnosed with Hypermobile Ehlers Danlos Syndrome back in April after a whole life of problems. Getting the answers I needed was such a…
New research identifies genetic cause for hypermobility and hypermobile Ehlers-Danlos syndrome, a novel discovery that may also, for the first time, allow medical professionals to diagnose and treat the connective tissue disorders.
"Some people and doctors will never see us from the inside out."
This sticker is for my Ehlers-Danlos Syndrome girlies! A kiss-cut gives you complete flexibility to create stickers in any shape you want. The sticker is cut to your desired shape but stays attached to the backing, making it easy to peel off smoothly. - Made from durable vinyl with strong 3M glue for long-lasting decorations - Ideal for indoor use (not waterproof) - Available in white and transparent options
Comorbidities (unofficial) listing of diseases and syndromes that are commonly found in people with Ehlers Danlos Syndrome.
Funny Chronic Illness Magnet, Chronic Pain Humor, Disability Awareness, Diabetes, Endometriosis, Ehlers Danlos Syndrome, Rheumatoid Arthritis, Lupus, Multiple Sclerosis, Fibromyalgia, Autoimmune Disease, Car Magnet, Fridge Magnet This and all other designs sold in this shop were hand drawn by the shop owner, Veronica Foster. Add a custom flair to your car with these personalized car magnets, that can stick to any metal surface thanks to the magnetic back. The front side is made with highly durable and weatherproof vinyl so that your magnet stays pristine even when left under direct sunlight. .: Materials: vinyl with black magnetic backing .: Matte finish .: All-weather durable .: Please note: white base might show through design (especially dark designs)
Ehlers-Danlos syndrome (EDS) is a group of disorders that affect connective tissues, such as: tissues that support the skin, bones, blood vessels, and other organs (2014, Genetics Home Reference). It is estimated that about 1 in 5,000 individuals worldwide suffer from EDS (Genetics Home Reference, 2014).
Ehlers Danlos Syndrome (EDS) is an illness with many symptoms resulting from a defect in the way collagen is produced. While there is no cure at the moment, there are ways to support collagen production in the body to decrease symptoms and help patients regain quality of life.
Our community didn't expect these things to help — but they did!
Looking for the perfect gift for someone with Ehlers Danlos Syndrome? Check out our top 15 gift ideas curated by someone with EDS to help make their day a little brighter.
Unlock nutrition tips & resources for optimal health while living with Ehlers-Danlos Syndrome. Explore our top 10 recommendations to support your well-being.
"Some people and doctors will never see us from the inside out."
