Some people with Vascular Ehlers-Danlos syndrome have a noticeable characteristic appearance, while others don't have any outward signs at all.
Is EDS hereditary? It's a genetic disorder most doctors aren't aware of. Like Aston, who died due to EDS, doctors thought she was faking her symptoms.
Ehlers-Danlos syndrome is genetic condition that may cause sacroiliac joint hypermobility, potential joint dysfunction and low back pain.
One evening, I stood up, felt sharp needles being hammered into my legs and feet, I fell back in bed, my legs didn't feel like mine anymore - they'd given way. I was 31 and I'd had Ehlers-Danlos syndrome all my life and I didn't even know it. Read on to know my journey which might help you or someone
Ehlers Danlos Syndrome (EDS) is an illness with many symptoms resulting from a defect in the way collagen is produced. While there is no cure at the moment, there are ways to support collagen production in the body to decrease symptoms and help patients regain quality of life.
Download the Zebra - print ribbon as symbol of rare-disease awareness, Ehlers-Danlos syndrome. Isolated vector illustration 4972108 royalty-free Vector from Vecteezy for your project and explore over a million other vectors, icons and clipart graphics!
Ehlers-Danlos syndrome (EDS) affects the body's connective tissues. Find out what causes this condition and how it's treated.
Discover effective treatments for Ehlers Danlos Syndrome (EDS): relief from pain, joint support, and improved quality of life.
For those of you interested in the overlap between Ehlers-Danlos (EDS)/hypermobility spectrum disorders (HSD) and autism, sensory issues in EDS/HSD probably come as no great surprise. Nevertheless,…
Abstract. Objective. To investigate whether orthostatic intolerance (OI) is a significant predictor for fatigue in Ehlers-Danlos Syndrome, hypermobility ty
EDS is a complex illness and can cause many serious physical issues beyond simply "being flexible."
• SWEATSHIRT • DESCRIPTION • Celebrate your unique journey with this fun and relatable sweatshirt designed for those living with POTS (Postural Orthostatic Tachycardia Syndrome) and hEDS (hypermobile Ehlers-Danlos Syndrome). Featuring a playful zebra graphic and the witty phrase "Not everyone can be POTS hEDS," this sweater is perfect for raising awareness and connecting with others in the chronic illness community. Wear it proudly and let the world know that your strength and resilience are one-of-a-kind. Check out our Unified By Design Shop for chronic illness and rare disease related t-shirts, sweatshirts, hoodies and tote bags: https://unifiedbydesignshop.etsy.com. This item makes the perfect gift for a loved one battling POTS Syndrome and hEDS. Show your support with a gift that brings both comfort and a smile. We include a 6" x 4" package insert with a personalized gift message at no extra cost. Be sure to select "This item is a gift" and fill out your message before completing your order. • ORIGINAL • DESIGN • Every design in this shop, Unified by Design, is a labor of love, crafted with originality and care. While some elements may be sourced from purchased clip art, the overall composition and creative concept are uniquely ours. We take pride in curating and arranging these elements to create meaningful and impactful designs that resonate with you. Your support directly fuels our passion for crafting original pieces that stand out from the crowd. Thank you for standing with us in supporting ethical and original creators like ourselves. Together, we're making a difference, one unique design at a time. 💕 • Q U I C K • F A C T S • ✺ 50% cotton 50% polyester ✺ No itchy side seams ✺ Available in additional colors, message us for options • P R I N T • This item features Direct-to-Garment printing, a process where the ink is printed directly into the fabric, ensuring a vibrant and long-lasting print. We're committed to environmentally friendly practices, and our print-on-demand model minimizes waste by producing items only when they're ordered. This not only reduces environmental impact but also allows us to maintain high-quality standards for every piece we create. • S I Z I N G • ✺ T-shirt sizing is unisex and runs true to size ✺ Designed for a comfortable fit, suitable for everyday wear ✺ Many customers prefer an oversized look; for this, size up accordingly ✺ View photo for sizing visuals and measurements • W A S H I N G • I N S T R U C T I O N S • To keep your garment looking fresh and vibrant, follow these simple steps: ✺Wash inside out to preserve the print's integrity ✺Use cold water and a mild detergent to protect the fabric and colors ✺Air dry or use a low-heat tumble in the dryer ✺Avoid fabric softeners, which can affect print quality and fabric feel ✺If ironing, turn the garment inside out and avoid ironing the graphic ✺Do not dry clean • S H I P P I N G • T I M E S • Our items are individually made with love for each of our buyers. Because of this, our processing time is 2-6 business days (depending on order volume) plus transit time, but typically much faster. We know our customers want their items as quickly as possible! • R E T U R N • P O L I C Y • We're dedicated to providing you with a top-notch experience, tailored to your needs. Due to the custom nature of our business and our commitment to print each item to order, we're unable to accept returns. However, if your order arrives defective or there's an error on our part, we're here to make it right with an exchange. Your satisfaction is our priority, so don't hesitate to reach out if you have any concerns. • K E E P • S H O P P I N G • ↓↓↓ ↓↓↓ If you need help finding an item in our shop, just send us a note. We are here to help! ✺ Shop our entire Unified by Design collection here: https://www.etsy.com/shop/UnifiedByDesignShop
"I know they’re saying it out of love, but it’s really just insensitive.”
Learn more about some of the bladder issues that patients with Ehlers-Danlos syndrome (EDS) may experience and tips for how to manage them.
Read actionable, expert tips from an Occupational Therapist who has Ehlers Danlos Syndrome (EDS) about how to manage your period when you have EDS or limited mobility.
Unlock nutrition tips & resources for optimal health while living with Ehlers-Danlos Syndrome. Explore our top 10 recommendations to support your well-being.
Although, being diagnosed with Ehlers Danlos Syndrome, has given me slightly more sanity. Living with this illness, like many chronic illness day-to-day is no easy task. One of my health therapis…
"Some people and doctors will never see us from the inside out."
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Dr. Bryce Lee, DPT, explains how we can tell which exercises are the best for people with Ehlers Danlos Syndrome, and which are the worst.
Looking for the perfect gift for someone with Ehlers Danlos Syndrome? Check out our top 15 gift ideas curated by someone with EDS to help make their day a little brighter.
Although, being diagnosed with Ehlers Danlos Syndrome, has given me slightly more sanity. Living with this illness, like many chronic illness day-to-day is no easy task. One of my health therapis…
EDS Strike’s back!! This last couple of weeks have been honestly quite hellish. Pain is all consuming and it feels like there’s no end in sight. This is a dark dark place to find yourse…
Hypermobility/Ehlers-Danlos Syndrome (hEDS) defines a spectrum of connective tissue disorders caused by defects in the genetic information
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Do you experience these symptoms?
EDS Back Pain can be a debilitating condition to live with. Untreated of this can lead to chronic pain and even a disability. Learn about the dangers of EDS.
Have you recently been diagnosed with Ehlers-Danlos syndrome but still have symptoms that don’t appear to be directly related? Do you have a friend who is incre
"What we conceal is not obvious to the rest.”
In recent years, an association between hypermobile Ehlers-Danlos syndrome (hEDS), mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS) has garnered attention and patients are increasingly presenting with this triad. However, a real relationship between these entities is unclear due to a lack of scientific validity. We conducted an extensive review of the literature using two different search strategies. A narrower strategy included 88 searches of various combinations of terms for each of the three conditions, yielding 19 unique papers. A broader search included 136 searches of various combinations of terms but included all forms of EDS and yielded 40 unique papers. Of these, only four and nine papers from the narrower and broader search strategies were original research articles. None of these papers resulted from a combination of the search terms for the three conditions. All three clinical entities are controversial in either existence or pathogenesis. MCAS is a poorly defined clinical entity, and many studies do not adhere to the proposed criteria when establishing the diagnosis. Patients previously diagnosed with EDS hypermobility type may not meet the new, stricter criteria for hEDS but may for a less severe hypermobility spectrum disorder (HSD). The pathophysiology of POTS is still unclear. An evidence-based, common pathophysiologic mechanism between any of the two, much less all three conditions, has yet to be described. Our review of the literature shows that current evidence is lacking on the existence of MCAS or hEDS as separate or significant clinical entities. Studies proposing a relationship between the three clinical entities are either biased or based on outdated criteria. The reason behind the purported association of these entities stems from an overlapping pool of vague, subjective symptoms, which is inadequate evidence to conclude that any such relationship exists.
"I’m not surprised I have an eating disorder with all of these symptoms."
With diagnoses of Ehlers-Danlos Syndrome, mast-cell activation syndrome and POTS, the Lara family found relief with a cleaner diet, exercise and by eliminating chemicals.
Discover the essentials of Hypermobile Ehlers-Danlos Syndrome (hEDS) in this guide. Learn about symptoms, treatment options - including the use of braces - for joint stability and pain relief, and tips for effective management. Elevate your quality of life with enhanced treatment!
