Long-time chronic illness patient Kate the (Almost) Great shares why you really need to track symptoms of your chronic illness + shares a free printable.
A lot of chronic illnesses come with fatigue and other symptoms that impact your energy. Some of them even have exercise intolerance as a symptom. In these illnesses, exercising causes symptoms and…
Long-time chronic illness patient Kate the (Almost) Great shares why you really need to track symptoms of your chronic illness + shares a free printable.
Recently I had a terrible flare up, and someone asked me "what exactly does that feel like? How was a flare-up different from the usual pain of my Ehl
Long-time chronic illness patient Kate the (Almost) Great shares why you really need to track symptoms of your chronic illness + shares a free printable.
Chronic Illness can bring you down emotionally and physically, but you don't have to take it lying down! These chronic illness quotes will
"While traveling can be hard on our bodies, being prepared will help."
So many Spoonies aren't talking about exercise intolerance and what it means to our daily lives. How do we live with it and do about it?
“Laughter might not actually cure anything – but it takes a lot less energy than crying!”
Completing household tasks when you have a chronic illness or disability feels overwhelming. There's cleaning, cooking, and laundry to worry about.
Credit: @ dear_chronic_pain on Instagram
Ehlers-Danlos syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS) are inter-related diseases.
Have you tried these hacks?
POTS has tachycardia symptoms that could influence the severity of Adrenal Fatigue in those suffering from this condition.
Check out what essential items I pack in my chronic illness day bag for vacations, day trips, and other fun summer adventures.
From research and my own experience, I’ve created a sort of guide to productivity with chronic illness, to help me & my fellow spoonies.
How to unlearn the completion compulsion to be able to pace well with chronic illnesses like ME/CFS, Fibromyalgia and Lyme disease.
I have discovered a few things that really help the symptoms of POTS and thought it would be good to share for others who may not know about them, they are simple but seem to help me a great deal a…
In recent years, an association between hypermobile Ehlers-Danlos syndrome (hEDS), mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS) has garnered attention and patients are increasingly presenting with this triad. However, a real relationship between these entities is unclear due to a lack of scientific validity. We conducted an extensive review of the literature using two different search strategies. A narrower strategy included 88 searches of various combinations of terms for each of the three conditions, yielding 19 unique papers. A broader search included 136 searches of various combinations of terms but included all forms of EDS and yielded 40 unique papers. Of these, only four and nine papers from the narrower and broader search strategies were original research articles. None of these papers resulted from a combination of the search terms for the three conditions. All three clinical entities are controversial in either existence or pathogenesis. MCAS is a poorly defined clinical entity, and many studies do not adhere to the proposed criteria when establishing the diagnosis. Patients previously diagnosed with EDS hypermobility type may not meet the new, stricter criteria for hEDS but may for a less severe hypermobility spectrum disorder (HSD). The pathophysiology of POTS is still unclear. An evidence-based, common pathophysiologic mechanism between any of the two, much less all three conditions, has yet to be described. Our review of the literature shows that current evidence is lacking on the existence of MCAS or hEDS as separate or significant clinical entities. Studies proposing a relationship between the three clinical entities are either biased or based on outdated criteria. The reason behind the purported association of these entities stems from an overlapping pool of vague, subjective symptoms, which is inadequate evidence to conclude that any such relationship exists.
Treatment Options for Postural Orthostatic Tachycardia Syndrome (POTS) by Doctor who Specializes in Treating POTS. Suggests Best Ways to Treat POTS Given Patient History.
Embrace the darker side of chronic illness with our edgy "Flare Day" hoodie featuring a skull graphic! Perfect for those who suffer with flare ups from conditions like chronic migraines, autoimmune arthritis, fibromyalgia, Crohn's disease and more. Available in sizes S-5XL in your choice of back print or with an additional front print. 🙃ITEM SIZING🙂 - Please READ. Please refer to the images for size charts. Please remember that this is Unisex (men's) sizing. We recommend sizing up 2 for the oversized look. If there is no picture of a design on the front of the garment, the front is blank. The design does scale up and down depending on size of the shirt. 🙃ITEM COLOR🙂 Colors may appear different due to differences in screens and monitors. The flat lays are the most accurate depiction of garment color as there is no editing by us or our customers. ✦ Unisex sizing ✦ Classic fit ✦ Size up 2 sizes for oversized look ✦ 50% cotton, 50% polyester ✦ Light-medium weight fabric ✦ No side seams 🙃SHIPPING/PRODUCTION🙂 This product is made especially for you as soon as you place an order, which is why it takes us a bit longer to deliver it to you. The time estimates are high as we would rather underpromise and overdeliver. Most shipments ship out in under 3 days. Please note that our production teams do not work on major holidays. We promise it will be worth the wait! 🔥🔥 Check out our bestselling spoonie shirts here! https://etsy.me/446H9Ya 🔥🔥 Or maybe stickers are your thing? Check out all our stickers here! https://etsy.me/3NXCSQJ 🙃CARE INSTRUCTIONS🙂 Machine wash inside out: warm (max 40C or 105F); Bleach as needed; Tumble dry: medium; Iron, steam or dry: low heat; Do not dryclean. 🙃RETURNS/EXCHANGES🙂 Because our items are made to order, we do not accept returns or exchanges. However, any issues with quality will be handled appropriately. Please reach out to me with any issues! 🙃CUSTOM🙂 Want a different color shirt, design or a completely different design completely? Prefer the design on the back instead of the front or vice versa? Please reach out and let's see if we can bring your idea to life! 📸Don't forget to join our community on Instagram for shop news, discounts & most importantly memes, fun & support from people who understand chronic illness. https://tinyurl.com/2z9er688📸 Welcome to Fvck Fibro, where we offer a collection of empowering products designed by an invisible illness warrior to bring a smile even when you don't want to. These items are thoughtfully crafted to uplift and inspire individuals facing fibromyalgia or other chronic illnesses such as lupus, rheumatoid arthritis, multiple sclerosis, mental health disorders etc. Unlike mass-produced options, our designs are born from personal experience and a genuine desire to make a difference in the lives of fellow chronic illness sufferers.
A simple flare tracker for your bullet journal or planner! Great for tracking symptoms and medications for any autoimmune or chronic illness like lupus, crohns, multiple sclerosis (MS), inflammatory bowel disease (IBD), IBS, rheumatoid arthritis (RA), migraines, fibromyalgia and more.
Visit the post for more.
Chronic Illness Pacing - What Is It? For anyone with chronic fatigue syndrome, fibromyalgia or any other chronic illness which leaves you with fatigue as
