Cindy Crowe spent close to 35 years trying to pretend that Lou Gehrig’s disease doesn’t exist.

The National ALS Registry enables persons with ALS to fight back and help defeat ALS(Lou Gehrigs Disease) By signing up, being counted,and answering brief questions about your disease, you can help researchers find answers to critical questions.

Doctors still don't understand the devastating disease, but they are making some real progress

Sufferers of serious brain diseases could one day be helped by stem cell treatments , according to scientists at Cambridge University.

Madeline Kennedy is a very busy woman. The 60-year-old Troy native (the former Madeline Ruether), is a volunteer, a golfer, a traveler, a bridge player and a mother of four. The title on her LinkedIn profile is Research Ambassador, a role that includes lobbying, personal counseling and community outreach. The word friends use to describe her is "remarkable." This is because Kennedy is also one of a group of people known as PALS - People with ALS. She was diagnosed with amyotrophic lateral sclerosis in May 2012, on her 36th anniversary with husband Brian, her high school sweetheart and...............................

Unless you haven't logged onto any social media site in the last week (highly impossible), you'd have seen videos of your beloved celebrities and friends accepting the ALS Ice Bucket Challenge and basically throwing a bucket of ice and water over their head. While you laugh at the incredulity of their actions, you're probably also

June 21 is Global #ALS Awareness Day! Share this infographic to spread the word #ALSWithoutBorders @ALSMNDAlliance

Quilters Dream Batting sponsors Hopes and Dreams for ALS Quilt Challenge.

https://vimeo.com/165626427 There are currently around 30,000 people in the U.S. living with ALS and that number grows by approximately 15 each day. MORE: Learn about Nanci, a much-loved Hollywood publicist who was diagnosed with amyotrophic lateral sclerosis in 2014 This ALS Association of...

It is good to know that society is far more aware of people with disabilities today.

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A promising study on stem cell transplantation to treat Lou Gehrig's Disease will be presented at the American Academy of Neurology's 65th Annual Meeting. Amyotrophic Lateral Sclerosis (ALS) or more commonly known as Lou Gehrig's Disease is a neurological disease that affects voluntary muscle movement. When a person wants to move a part of the body, like the hand, the signal first starts in the brain (the motor cortex), travels through the central nervous system (the spine) and to the peripheral nervous system (the nerves connecting to the particular muscle). In ALS, the two systems, The central nervous system (CNS) and the peripheral nervous system (PNS) start to deteriorate. There is nothing wrong with the muscle but because the nerve connection is lost, the muscle starts to shrivel up and dies. In advance stages of the disease, the ability to speak is also affected. ALS is not as common as other neurological diseases like Parkinson's Disease or Alzheimer's Disease. In the United States, 5,600 each year gets diagnosed with ALS and there are around 30,000 Americans living with the disease at any given time. Although muscle twitches (involuntary small movement of muscles) is a symptom of ALS, these twitches are a common occurrence due to an overactive nerve cell. It doesn't necessarily mean that one has ALS because of it. Difficulty chewing or swallowing, speaking problems, and muscle weakness and stiffness are additional symptoms. There is no definitive test to diagnose the disease. Instead, physical examinations, blood tests, MRI imaging, and electrical study of nerves and muscles are used to detect the disease. There is no cure for ALS. The cause for ALS is unknown but 5% to 10% of ALS cases are hereditary. People aged 40 to 70 usually the age where Lou Gehrig's disease appears but there are cases where people as young as 15 start to suffer from it. In Europe, statistics show that healthy football players have higher incidence of ALS which leads to a theory that the disease is associated with physical activity. Aside from statistical data, there is no solid evidence behind this assumption. Stephen Hawking, the famous physicist, suffers from ALS. Stem Cell Therapy For Amyotrophic Lateral Sclerosis (ALS) Apparent stem cell transplant success in mice may hold promise for people with amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease. The results of the study were released today and will be presented at the American Academy of Neurology's 65th Annual Meeting in San Diego, March 16 to 23, 2013. "There have been remarkable strides in stem cell transplantation when it comes to other diseases, such as cancer and heart failure," said study author Stefania Corti, MD, PhD, with the University of Milan in Italy and a member of the American Academy of Neurology. "ALS is a fatal, progressive, degenerative disease that currently has no cure. Stem cell transplants may represent a promising avenue for effective cell-based treatment for ALS and other neurodegenerative diseases." Video: ALS (Lou Gehrig's Disease) For the study, mice with an animal model of ALS were injected with human neural stem cells taken from human induced pluripotent stem cells (iPSCs). iPSC are adult cells such as skin cells that have been genetically reprogrammed to an embryonic stem cell-like state. Neurons are a basic building block of the nervous system, which is affected by ALS. After injection, the stem cells migrated to the spinal cord of the mice, matured and multiplied. The study found that stem cell transplantation significantly extended the lifespan of the mice by 20 days and improved their neuromuscular function by 15 percent. "Our study shows promise for testing stem cell transplantation in human clinical trials," said Corti. RELATED LINKS American Academy of Neurology University of Milan The Italian Foundation for Research on Amyotrophic Lateral Sclerosis (ALS) Sodium Buildup in Brain Linked To Multiple Sclerosis Disability and Nerve Degeneration Repairing Spinal Cord Injuries Through Schwann Cell Transplantation and Inhibition of Scarring Motor Skills Interactions Affect How Brain Hemispheres Process Different Kinds of Sounds Studying Cell Senescence And Its Relation To The Aging Of the Brain Brain Stem Cells Identified For Smarter and Bigger Brains Exposure to Pesticide and Head Injury Resulting To Loss of Consciousness Increases Risk of Parkinson's Disease Eye Writing Technology Help People Unable To Communicate Diffusion Tensor Imaging Show Simple Mental Activities Can Maintain Healthy Brain In Old Age Study Reiterates Position That Ginkgo Biloba Has No Significant Effect Against Alzheimer's Disease Deep Space Travel Can Be Harmful To The Brain Due To Cosmic Radiation MIT News: Astrocyte Brain Cells Plays Key Role In Processing Sensory Information Mind Reading Device Allow Mute and Disabled To Communicate With Others Effective Screening for Alzheimer's Disease Through MRI of the Cerebrospinal Fluid Drug Controls Brain Inflammation to Treat Alzheimer's, Parkinson's, Multiple Sclerosis, and Traumatic Brain Injury Stress Management Program Reduces Multiple Sclerosis Disease Activity Research Into How Common Cat Parasite, Toxoplasma gondii, Enters The Human Brain Elite Group of Elderly "SuperAgers" Over 80 Have Younger Sharper Acting Brains

Read six tips for lifestyle adaptation after a diagnosis with amyotrophic lateral sclerosis (ALS) and managing the disease.

Amyotrophic lateral sclerosis is a neurological disease which impacts motor neurons that are involved in muscle movement throughout the body. The progressive degeneration of neurons causes weakened muscles and can lead to paralysis. There is no cure for ALS, but riluzole has been used to help with the damage to the motor neurons. Resources: ALSA.org Lougehrig.com NIH.gov ALSA.org Mayoclinic.org MDA.org NIH.gov ALShopefoundation.org Download the PDF version of the ALS infographic By: Lisa Ikariyama; Design: Kim Mesman

From the latest neurology news, treatments and therapies, inspiring patient stories, to expert advice, we're here to help you live your healthiest life every day.

Sarah Ezekiel, from North London, has motor neurone disease. She is using a computer that works by tracking her eye movements to paint, talk and email.

A charming 12" tall wooden lady was sold as a reproduction of the Hagar Tyler doll. Made by dollmaker Fred Laughon, she was sold without clothing OR fully clothed in the the shop on Duke of Gloucester Street in Williamsburg. It's fairly rare to find one of these interesting reproductions with her original clothing intact. Even when present, the garments have often become sun faded and grimy with dust during the past 30-40 years. Layers of clothing, consisting of a cotton tartan flannel petticoat, an unbleached muslin petticoat, dainty lawn overskirt, solid color or printed cotton bodice, and neck ruffle, are sewn sequentially onto her wooden form. Sometimes dressed Hagar dolls wore a very small, lace trimmed "pinner" style cap that served to keep the doll's hair clean and neat. Even though they were sewn into her flax hair style, they often go missing. For decades I have puzzled about the way the doll's maker intended for Hagar's wooden arms to be attached at her shoulders. Unfortunately, the dolls sold dressed have provided some help solving this mystery: their arms are sewn to the inside of the gown's sleeves and not attached to her body at all! There are, in fact, no cut openings through which her arms might pass. Nor were these clothes are not meant to be taken off and on. I've made a few simple changes to some of Hagar's clothes that making dressing (or re-dressing) your doll a little easier. Depending on which garments you choose, you may still have to do a bit of sewing. I offer both an unbleached cotton flannel petticoat and a muslin one that are identical in dimension to Hagar's original garb, but with drawstring waists so they are easy to put on and fit to her body. They are removable and can be washed if needed. They provide much needed support for the filmy lawn overskirt. I often have a few of the original tartan petticoats in stock -- they must be gathered and sewn to your doll. The pinner cap is identical to the original ones in style and material and sewn completely by hand. You can secure it by sewing it into her hair, but it will stay on her head without sewing as well. The gown and neck ruffle must be sewn onto the doll who will wear them. Hagar bodies are about the same size, but changed slightly in dimension over the 20 years or so that they were produced. Sewing her bodice to her body ensures a good fit regardless of the year your doll was made. You have the option of adding a pair of replica wooden arms to your purchase of a new gown OR sewing your doll's arms into the gown after you receive it. If your doll has attached arms, let me know and I'll make sure you receive a gown with holes through which to pass her arms. After sewing her into her gown, the neck kerchief/ruffle is tucked into the neckline and must be secured with hand sewn stitches. The ruffle has been hemmed by hand and gathered to the correct size by machine. The garments in this listing comprise Hagar's basic outfit. If you are seeking additional items such as her red cloak, lace trimmed lappet cap, straw garden hat, etc., see them and more in this listing: https://www.etsy.com/listing/1669334302