This Spoonie Planner is a game-changer for chronic illness management! I made this Spoonie planner for my friends who have conditions that require energy management!
To most, the words “self-care” conjure visions of face masks and nail polish. But, for those of us battling a chronic illness, self-care looks a little different.The next time you need …
When you have limited energy and a long list of people to take care - it makes sense that self-care is going to fall way down - or off - that list. I've been there. But, the problem with that is it becomes harder and harder to give from an empty cup. I'll never be
Have you tried these hacks?
Patients with tarsal tunnel syndrome present with pain in the inside of the ankle or heel region that radiates into the sole of their foot. This pain can have a sharp, shooting, electrical, dull, or burning feeling and may be associated with numbness. The pain is often worse with activity and towards the evening.
Do you have issues with your thyroid health? These are 10 signs that you may be experiencing thyroid problems without noticing.
In 2005 a new range of skin care products from Eucerin (Beiersdorf Inc) called Eucerin Redness Relief was released. They are claimed as “Safe for sensitive skin and appropriate for Rosacea…
These products help our endo community relieve pain and stay comfortable.
How can ophthalmologists best manage this common, yet complex, condition? Starting with how to assess symptoms to determine appropriate treatment, three experts outline their approaches—with an eye to
When you first get an ostomy, the world of products available can be a very disorientating and intimidating place. Do I need a ring? What is a flange? I decided to put together a glossary type guid…
Building a migraine care package is individual to everyone. Migraine products may treat or soothe migraine symptoms or triggers.
This part of the Worry Head blog is about endometriosis, it gives you all the necessary knowledge about the illness...
A printable symptom journal is a handy tool for tracking your health over time. By keeping a daily record of symptoms, you can identify patterns or triggers that affect your wellbeing, facilitating more informed conversations with your healthcare provider..
In this post, chronic illness patient and blogger Kate the (Almost) Great shares self-care tips for chronic illness patients specifically.
Let's face it, at some point in our lives, we will face a medical crisis, take care of a family member with a major illness, or care for elderly parents. What do they all have in common? Lots of paperwork. Learn how you can organize your medical files and records to give you one less thing to worry about during this time of extensive medical care - plus a FREE medical file printable and checklist for the entire family!
Having Chronic Fatigue Syndrome, or any other chronic illness for that matter, can be extremely draining and leave you without much energy to do even the most basic things. How do you cope when you only have enough energy to do one or two things each day? There are a number of things I started […]
Need an ADL treatment idea for dressing? Try this theraband dressing technique! Work on the components of dressing when you can't actually do it.
Master the important but difficult skills involved in making sure you dont run out of energy when you have an illness like ME/CFS, Fibromyalgia or Lyme disease
When it comes to a chronic health condition like fibromyalgia, the symptoms themselves are difficult enough to deal with. For example, besides the pain, ...
Here is how I “explain my brain” and the impact that Chiari Malformation symptoms have on my life after symptom onset at 14 and a diagnosis at 18
In recent years, an association between hypermobile Ehlers-Danlos syndrome (hEDS), mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS) has garnered attention and patients are increasingly presenting with this triad. However, a real relationship between these entities is unclear due to a lack of scientific validity. We conducted an extensive review of the literature using two different search strategies. A narrower strategy included 88 searches of various combinations of terms for each of the three conditions, yielding 19 unique papers. A broader search included 136 searches of various combinations of terms but included all forms of EDS and yielded 40 unique papers. Of these, only four and nine papers from the narrower and broader search strategies were original research articles. None of these papers resulted from a combination of the search terms for the three conditions. All three clinical entities are controversial in either existence or pathogenesis. MCAS is a poorly defined clinical entity, and many studies do not adhere to the proposed criteria when establishing the diagnosis. Patients previously diagnosed with EDS hypermobility type may not meet the new, stricter criteria for hEDS but may for a less severe hypermobility spectrum disorder (HSD). The pathophysiology of POTS is still unclear. An evidence-based, common pathophysiologic mechanism between any of the two, much less all three conditions, has yet to be described. Our review of the literature shows that current evidence is lacking on the existence of MCAS or hEDS as separate or significant clinical entities. Studies proposing a relationship between the three clinical entities are either biased or based on outdated criteria. The reason behind the purported association of these entities stems from an overlapping pool of vague, subjective symptoms, which is inadequate evidence to conclude that any such relationship exists.
Are you a caregiver taking care of an elderly spouse or family member or just want to get your own health issues organized? I want you to be prepared with my brand new minimal Doctor Office Visit Medical Records Bundle. Taking care of someone's prescriptions, insurance, and just daily care can be extremely demanding.
Comorbidities (unofficial) listing of diseases and syndromes that are commonly found in people with Ehlers Danlos Syndrome.
Do you experience these symptoms?
Easy, soothing stretches you can do anywhere to release back pain.
Are you always uncomfortable in your clothes? Look here for simple tips for how to care for, hack, and adjust your clothes for maximum comfort!
These hypermobility exercises require minimal equipment and allow you to focus on finding the right muscles and getting them working.
Reduce stress-induced tension & teeth grinding during the day or night While it's normal to clench your jaw from time to time, persistent clenching can cause headaches, tooth damage, and other problems. The habit is most often caused by...
Have you tried these hacks?
Simple living rules for those want to start living a simple life. Here are 13 rules I follow that keep my life simple
life hacks for spoonie bloggers or spoonies in general, on fashion and blogging (or freelancing/working in general), tips from other spoonie bloggers!
When you're figuring out the right adrenal fatigue diet, it is so important to avoid these common foods to help you recover from the stress and tiredness.
Living with chronic illness can make creating routines feel impossible. But routines are vital for managing limited energy and unpredictable symptoms. The secret? Flexibility. Think of routines as a gentle framework, not rigid rules. Start small with simple morning check-ins, basic self-care, and "good day" versus "bad day" versions of your tasks. By crafting adaptable routines, you'll gain confidence, prioritize essentials, and better navigate the challenges of chronic illness.
Spring cleaning tips to help you make your home chronically friendly to decrease the odds of injuring yourself and live better despite your chronic illness!
Read about self-care ideas for Chronic Illness and why you need them. At Quit Chronic Fatigue find alternative health and taking charge of your own healing
